European Reference Network

ERN CRANIO is a European Reference Network for rare and/or complex craniofacial anomalies, and Ear, Nose, and Throat (ENT) disorders. Experts from hospitals in Europe are connected to this network. We cover a wide range of conditions, including craniosynostosis (isolated & syndromic), craniofacial anomalies (such as craniofacial microsomia, Treacher Collins, Pierre Robin Sequence), cleft lip and palate, orodental anomalies and ENT

https://www.ern-cranio.eu/